May’s Warrior – Joseph

Joseph is 9, and lives with autism and ADHD, for which he takes medication and has regular therapy. He has an inner ear disorder which makes him extremely prone to ear, throat and chest infections from the slightest illness, and has had 3 grommet operations, adenoid removal and his tonsils taken out. He’s spent time in ICU for pneumonia and recently had dental reconstruction surgery on his front teeth, but the worst of all was when he contracted Scarlet Fever. ...

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The Story of Katie

Katie’s smile is the first thing you notice about her – broad and cheekily beaming. Her smile is her superpower, bringing joy to everyone around her. Yet beneath that smile is a life where challenges are many, and strength and positivity abound.

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April’s Warrior – Aroha

Aroha’s mum is a nurse, so when Aroha was unwell for months with multiple hospital admissions for asthma and high fevers, she knew something was wrong. They were told it was just flu season, and tried several different medications and doctors before someone finally listened – and Aroha was diagnosed with Acute Lymphoblastic Leukaemia.

Luckily she was diagnosed early enough that her doctors were able to take some time to stabilise her before starting chemotherapy. Any longer waiting for a diagnosis ...

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March’s Warrior – Xavier

Xavier’s diagnoses began when he was just a toddler and suffered repeated dislocations of his elbow. He was diagnosed with Ehlers Danlos Syndrome (EDS), a genetic disorder of the connective tissues which causes joint instability and fragile skin. He was then diagnosed with ADHD at age 3 when he became increasingly violent and was unable to control his urges.

Xavier is now 9, and along with the EDS and ADHD also lives with Sensory Processing Disorder, anxiety, complex migraines, Postural Orthostatic ...

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February’s Warrior – Kyra

In February 2016, Kyra became unwell. She started getting fevers all the time and experiencing excruciating pain in her legs. She lost a lot of weight and always had dark circles around her eyes. She made several visits to the local hospital (2 hours from her home), where the doctors concluded she had a virus. But after a gruelling 6 weeks Kyra’s mum insisted she be transferred to PMH where she underwent an MRI, a bone density scan, an ultra ...

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The Story of Charlotte

 

Charlotte has joy in being, hanging out and living in the present moment.

Charlotte was a relaxed, happy baby. A dream baby, who slept well, ate well and was full of joy. It was her first birthday when her parents noticed something different. They noticed that she was looking at, but not really seeing her colourful musical toy. Her personality changed and she became gloomy, would get upset and screamed easily. She stopped bottom shuffling ...

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January’s Warrior – Junior

Junior was born full term, a seemingly healthy 8lbs 5oz. Shortly after he was born, doctors noticed he wasn’t breathing properly and he looked quite blue. After stabilising him, they discovered he had a congenital cardiac anomaly and respiratory distress.

He had a major congenital heart defect known as Total Anomalous Pulmonary Venous Return (TAPVR), and was immediately rushed to Princess Margaret Hospital. At 6 just days old he had heart surgery to correct the defect – and then spent ...

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December’s Warrior – Caitlin

When Caitlin was just 4 months old, a series of tests including ultrasound, blood tests, lumbar punctures and an electroencephalogram (EEG) revealed her first diagnosis – Quadriplegic Spastic Cerebral Palsy. This means that damage in her brain has disrupted normal muscle functioning in all four of her limbs, causing jerky movements, muscle tightness and stiffness in her joints.

Caitlin is now 17, and her diagnoses have continued to pile up ever since. They now include chronic lung disease, epilepsy and vision ...

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The Story of Emily

 

Today’s story is about the power – the superpower! – of positivity.

Little Hero Emily has Spastic Diplegia, a type of Cerebral Palsy. Her parents were told when she was four weeks old (after being born at 29 weeks gestation) that she might not live, might not walk, and might not ever talk.

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