With her joyful smile, big blue eyes and super-long eyelashes, Lucy brightens every room she walks into. Her cuddles are her super-power – when Lucy wraps her arms tightly around you, it’s impossible not to feel happy!
From the cheeky smile on her ...
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Riley is living with chronic lung disease, and is looks forward to celebrating his 7th birthday in January!
He was very sick as a baby and was constantly in and out of hospital. Then he started getting chronic ear infections, to the point where they would ooze puss 24/7. His ENT referred him on to the respiratory department, who discovered he has floppy airways that trap mucus in his lungs, and diagnosed him with CLD.
He has had many surgeries and ...
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Jaiden was first diagnosed with Acute Lymphoblastic Leukaemia at the age of 2, in September 2012, after his mum Jurna found a rash and a sore on his bottom. He was taken to PMH for some tests including blood and urine. After an exhausting 5 hour wait, his parents were given the devasting news about his diagnosis.
Acute lymphoblastic leukaemia (ALL) is a type of cancer that affects the blood and bone marrow. ALL is characterised by an overproduction of immature ...
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This month is a DOUBLE WARRIOR SPECIAL! Please write to both children to let them know how special they are.
Siblings Xander (10) and Lily (13) deal with chronic pain that would floor most people every day of their lives, thanks to a genetic disorder called Ehlers Danlos Syndrome (EDS). EDS is a connective tissue disorder resulting in faulty collagen – which is the body’s glue. Imagine building a brick house with PVA glue instead of cement, and you have an ...
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If there is one thing that everyone agrees on, it’s that Téa is certainly cheeky. Tete (Taytay) or Principessa/ Princess as she is fondly known at home (or sometimes Poopants which she is not a fan of) has the gift of being able to win the heart of everyone who meets her.
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Even before he was born, Brax’s mum, Brooke and dad, Gary knew that their little man was going to have it tough with having only one kidney. Unfortunately this wasn’t the only health complication Brax would have to recover from. Brax was diagnosed with VACTERL association, a rare disorder that affects multiple organ systems, including the heart and kidneys. In Brax’s case he was born with one kidney, a heart murmur and a number of other birth defects. Brax also ...
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Maddie’s journey has been quite complicated right from the beginning. She initially spent 7 days in ICU when she was diagnosed with AML on 6th January 2018.
She had a stroke a few days later as a result of the leukemia, which caused her to go blind and left her with some weakness on her left side. She ...
Two-year-old Jasper has been a fighter from the moment he took his first breath. Diagnosed with Severe Combined Immunodeficiency (SCID) a few months after birth, Jasper was basically born without an immune system, having no T or NK cells, making him extremely vulnerable to any and all infections.
A beautiful little boy who has had it tough from his very first breath. He has had a cough since birth and didn’t put on weight or grow. He was never supposed to crawl, walk or talk. Truth be known, the doctors didn’t think he would live past his fifth birthday – but he celebrated his 6th birthday a few months ago and is still going strong.
A CT scan at six ...
Tess was diagnosed with Acute Myeloid Leukaemia (AML) on 28 March 2018 at the tender age of 11. Her official diagnoses came from Fiona Stanley Emergency Department after a quick-thinking family friend (who works at the hospital) recommended heading straight to emergency after hearing her symptoms. Tess was rushed into ICU and although Tess’ parents didn’t know it at the time, the hospital did not think she would survive the night. Meanwhile, Tess’ older sister Ella was also in hospital ...
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