The Story of Charlotte

 

Charlotte has joy in being, hanging out and living in the present moment.

Charlotte was a relaxed, happy baby. A dream baby, who slept well, ate well and was full of joy. It was her first birthday when her parents noticed something different. They noticed that she was looking at, but not really seeing her colourful musical toy. Her personality changed and she became gloomy, would get upset and screamed easily. She stopped bottom shuffling ...

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January’s Warrior – Junior

Junior was born full term, a seemingly healthy 8lbs 5oz. Shortly after he was born, doctors noticed he wasn’t breathing properly and he looked quite blue. After stabilising him, they discovered he had a congenital cardiac anomaly and respiratory distress.

He had a major congenital heart defect known as Total Anomalous Pulmonary Venous Return (TAPVR), and was immediately rushed to Princess Margaret Hospital. At 6 just days old he had heart surgery to correct the defect – and then spent ...

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December’s Warrior – Caitlin

When Caitlin was just 4 months old, a series of tests including ultrasound, blood tests, lumbar punctures and an electroencephalogram (EEG) revealed her first diagnosis – Quadriplegic Spastic Cerebral Palsy. This means that damage in her brain has disrupted normal muscle functioning in all four of her limbs, causing jerky movements, muscle tightness and stiffness in her joints.

Caitlin is now 17, and her diagnoses have continued to pile up ever since. They now include chronic lung disease, epilepsy and vision ...

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The Story of Emily

 

Today’s story is about the power – the superpower! – of positivity.

Little Hero Emily has Spastic Diplegia, a type of Cerebral Palsy. Her parents were told when she was four weeks old (after being born at 29 weeks gestation) that she might not live, might not walk, and might not ever talk.

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November’s Warrior – Hunter

On the 6th of November 2016, Hunter was enjoying himself at the spring fair like any other 3 year old. He was recovering from an ear infection and pneumonia and was looking quite pale.

Concerned, his mother touched his chest and immediately realized something wasn’t quite right. Hunter’s heart was racing. He was rushed to PMH in an ambulance, and was later diagnosed with Acute Lymphoblastic Leukaemia. In an instant the family’s world was turned upside down.

Hunter has endured 6 intense ...

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October’s Warrior – Leila

When Leila was 4, she was diagnosed with Mucopolysaccharidosis type 4 (MPS IV) also known as Morquio A Syndrome: a rare progressive condition that mainly affects the skeleton. The life expectancy of people with MPS IV depends on the severity of their symptoms – severely affected individuals may survive only until late childhood or adolescence. Those with milder forms of the disorder usually live into adulthood, although their life expectancy may be reduced. Spinal cord compression and airway obstruction are ...

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The Story of Rayaan

 

Heroism is not constrained by age or size. Rayaan, sometimes known as Little Buddha for his chubby appearance and calm nature, was a happy, healthy baby boy until he stopped breathing two weeks after his first birthday. He had no history of serious illness, there was no warning. It was terrifying for his parents to watch the emergency treatment needed to ...

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September’s Warriors – Flynn and Tilly

This month we’re running a Double Warrior Special! Please send individual cards to each child to show them how inspiring they are!

Flynn is an enthusiastic almost 4-year-old boy who loves to show affection and tells everyone he sees about his interest in cars. He has a big sister Tilly who has just celebrated her 5th birthday (her first one not celebrated in the hospital). They have a very close sibling bond and she likes to help with his care everyday.

At ...

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