November Warrior Mail – Xander & Lily

November Warrior Mail – Xander & Lily

This month is a DOUBLE WARRIOR SPECIAL! Please write to both children to let them know how special they are.

Siblings Xander (10) and Lily (13) deal with chronic pain that would floor most people every day of their lives, thanks to a genetic disorder called Ehlers Danlos Syndrome (EDS). EDS is a connective tissue disorder resulting in faulty collagen – which is the body’s glue. Imagine building a brick house with PVA glue instead of cement, and you have an ...

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Communified, emotional support, rare diseases, siblings, Warrior Mail

The Story Of Téa

If there is one thing that everyone agrees on, it’s that Téa is certainly cheeky. Tete (Taytay) or Principessa/ Princess as she is fondly known at home (or sometimes Poopants which she is not a fan of) has the gift of being able to win the heart of everyone who meets her.

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Little Heroes of Perth

Brave Boy Brax

Brave Boy Brax

Even before he was born, Brax’s mum, Brooke and dad, Gary knew that their little man was going to have it tough with having only one kidney. Unfortunately this wasn’t the only health complication Brax would have to recover from. Brax was diagnosed with VACTERL association, a rare disorder that affects multiple organ systems, including the heart and kidneys. In Brax’s case he was born with one kidney, a heart murmur and a number of other birth defects. Brax also ...

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Warrior Mail

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Maddie’s Journey

Maddie’s Journey

Maddie’s journey has been quite complicated right from the beginning. She initially spent 7 days in ICU when she was diagnosed with AML on 6th January 2018.

She had a stroke a few days later as a result of the leukemia, which caused her to go blind and left her with some weakness on her left side. She ...

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AML, awareness

Meet Caleb

Meet Caleb

A beautiful little boy who has had it tough from his very first breath. He has had a cough since birth and didn’t put on weight or grow. He was never supposed to crawl, walk or talk. Truth be known, the doctors didn’t think he would live past his fifth birthday – but he celebrated his 6th birthday a few months ago and is still going strong.
A CT scan at six ...

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Uncategorized

Tess’ Story

Tess’ Story

Tess was diagnosed with Acute Myeloid Leukaemia (AML) on 28 March 2018 at the tender age of 11. Her official diagnoses came from Fiona Stanley Emergency Department after a quick-thinking family friend (who works at the hospital) recommended heading straight to emergency after hearing her symptoms. Tess was rushed into ICU and although Tess’ parents didn’t know it at the time, the hospital did not think she would survive the night. Meanwhile, Tess’ older sister Ella was also in hospital ...

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cancer, siblings, Warrior Mail

The Story of Marc

At 6 years of age, Marc, seems to have an uncanny knack or superpower of making everyone fall in love with him. Aptly nicknamed Our Blue Eyed Hero, Mum Bec and Dad Stuart say from the moment he was born and then later at his more regular visits at PMH, with his big blue eyes and blonde ringlets he ...

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Little Heroes of Perth, rare diseases

June’s Warrior – Bodhi

June’s Warrior – Bodhi

Bodhi is a super sibling – an ordinary 7 year old boy who has seen and experienced many things that no child ever should.

In September 2016, Bodhi’s little sister was flown to PMH by the Royal Flying Doctor Service for an MRI, following which she was diagnosed with a brain tumour. The tumour can’t be removed because it’s attached to her optic nerve, so she is under treatment to stop it from growing. Because she no longer has an IV ...

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brain tumours, cancer, emotional support, siblings, Warrior Mail

The Story of Imogen


Choosing just one favourite thing about your child is no easy feat for any parent. Brooke, mother to 5 year old Imogen, certainly found it a challenge. She told us:

“I love everything about her. She is perfect to me. Her smile, her giggle, everything.”

But when pressed to highlight Imogen’s superpowers, Brooke didn’t hesitate to talk about how much she admires Imogen’s ...

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Little Heroes of Perth, rare diseases

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