Maddie’s journey has been quite complicated right from the beginning. She initially spent 7 days in ICU when she was diagnosed with AML on 6th January 2018.
She had a stroke a few days later as a result of the leukemia, which caused her to go blind and left her with some weakness on her left side. She ...
Two-year-old Jasper has been a fighter from the moment he took his first breath. Diagnosed with Severe Combined Immunodeficiency (SCID) a few months after birth, Jasper was basically born without an immune system, having no T or NK cells, making him extremely vulnerable to any and all infections.
A beautiful little boy who has had it tough from his very first breath. He has had a cough since birth and didn’t put on weight or grow. He was never supposed to crawl, walk or talk. Truth be known, the doctors didn’t think he would live past his fifth birthday – but he celebrated his 6th birthday a few months ago and is still going strong.
A CT scan at six ...
Tess was diagnosed with Acute Myeloid Leukaemia (AML) on 28 March 2018 at the tender age of 11. Her official diagnoses came from Fiona Stanley Emergency Department after a quick-thinking family friend (who works at the hospital) recommended heading straight to emergency after hearing her symptoms. Tess was rushed into ICU and although Tess’ parents didn’t know it at the time, the hospital did not think she would survive the night. Meanwhile, Tess’ older sister Ella was also in hospital ...
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At 6 years of age, Marc, seems to have an uncanny knack or superpower of making everyone fall in love with him. Aptly nicknamed Our Blue Eyed Hero, Mum Bec and Dad Stuart say from the moment he was born and then later at his more regular visits at PMH, with his big blue eyes and blonde ringlets he ...
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Bodhi is a super sibling – an ordinary 7 year old boy who has seen and experienced many things that no child ever should.
In September 2016, Bodhi’s little sister was flown to PMH by the Royal Flying Doctor Service for an MRI, following which she was diagnosed with a brain tumour. The tumour can’t be removed because it’s attached to her optic nerve, so she is under treatment to stop it from growing. Because she no longer has an IV ...
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Choosing just one favourite thing about your child is no easy feat for any parent. Brooke, mother to 5 year old Imogen, certainly found it a challenge. She told us:
“I love everything about her. She is perfect to me. Her smile, her giggle, everything.”
But when pressed to highlight Imogen’s superpowers, Brooke didn’t hesitate to talk about how much she admires Imogen’s ...
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Joseph is 9, and lives with autism and ADHD, for which he takes medication and has regular therapy. He has an inner ear disorder which makes him extremely prone to ear, throat and chest infections from the slightest illness, and has had 3 grommet operations, adenoid removal and his tonsils taken out. He’s spent time in ICU for pneumonia and recently had dental reconstruction surgery on his front teeth, but the worst of all was when he contracted Scarlet Fever. ...
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Aroha’s mum is a nurse, so when Aroha was unwell for months with multiple hospital admissions for asthma and high fevers, she knew something was wrong. They were told it was just flu season, and tried several different medications and doctors before someone finally listened – and Aroha was diagnosed with Acute Lymphoblastic Leukaemia.
Luckily she was diagnosed early enough that her doctors were able to take some time to stabilise her before starting chemotherapy. Any longer waiting for a diagnosis ...
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Katie’s smile is the first thing you notice about her – broad and cheekily beaming. Her smile is her superpower, bringing joy to everyone around her. Yet beneath that smile is a life where challenges are many, and strength and positivity abound.