Tess’ Story

Tess was diagnosed with Acute Myeloid Leukaemia (AML) on 28 March 2018 at the tender age of 11. Her official diagnoses came from Fiona Stanley Emergency Department after a quick-thinking family friend (who works at the hospital) recommended heading straight to emergency after hearing her symptoms. Tess was rushed into ICU and although Tess’ parents didn’t know it at the time, the hospital did not think she would survive the night. Meanwhile, Tess’ older sister Ella was also in hospital ...

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The Story of Marc

At 6 years of age, Marc, seems to have an uncanny knack or superpower of making everyone fall in love with him. Aptly nicknamed Our Blue Eyed Hero, Mum Bec and Dad Stuart say from the moment he was born and then later at his more regular visits at PMH, with his big blue eyes and blonde ringlets he ...

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June’s Warrior – Bodhi

Bodhi is a super sibling – an ordinary 7 year old boy who has seen and experienced many things that no child ever should.

In September 2016, Bodhi’s little sister was flown to PMH by the Royal Flying Doctor Service for an MRI, following which she was diagnosed with a brain tumour. The tumour can’t be removed because it’s attached to her optic nerve, so she is under treatment to stop it from growing. Because she no longer has an IV ...

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The Story of Imogen


Choosing just one favourite thing about your child is no easy feat for any parent. Brooke, mother to 5 year old Imogen, certainly found it a challenge. She told us:

“I love everything about her. She is perfect to me. Her smile, her giggle, everything.”

But when pressed to highlight Imogen’s superpowers, Brooke didn’t hesitate to talk about how much she admires Imogen’s ...

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May’s Warrior – Joseph

Joseph is 9, and lives with autism and ADHD, for which he takes medication and has regular therapy. He has an inner ear disorder which makes him extremely prone to ear, throat and chest infections from the slightest illness, and has had 3 grommet operations, adenoid removal and his tonsils taken out. He’s spent time in ICU for pneumonia and recently had dental reconstruction surgery on his front teeth, but the worst of all was when he contracted Scarlet Fever. ...

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The Story of Katie

Katie’s smile is the first thing you notice about her – broad and cheekily beaming. Her smile is her superpower, bringing joy to everyone around her. Yet beneath that smile is a life where challenges are many, and strength and positivity abound.

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April’s Warrior – Aroha

Aroha’s mum is a nurse, so when Aroha was unwell for months with multiple hospital admissions for asthma and high fevers, she knew something was wrong. They were told it was just flu season, and tried several different medications and doctors before someone finally listened – and Aroha was diagnosed with Acute Lymphoblastic Leukaemia.

Luckily she was diagnosed early enough that her doctors were able to take some time to stabilise her before starting chemotherapy. Any longer waiting for a diagnosis ...

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March’s Warrior – Xavier

Xavier’s diagnoses began when he was just a toddler and suffered repeated dislocations of his elbow. He was diagnosed with Ehlers Danlos Syndrome (EDS), a genetic disorder of the connective tissues which causes joint instability and fragile skin. He was then diagnosed with ADHD at age 3 when he became increasingly violent and was unable to control his urges.

Xavier is now 9, and along with the EDS and ADHD also lives with Sensory Processing Disorder, anxiety, complex migraines, Postural Orthostatic ...

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February’s Warrior – Kyra

In February 2016, Kyra became unwell. She started getting fevers all the time and experiencing excruciating pain in her legs. She lost a lot of weight and always had dark circles around her eyes. She made several visits to the local hospital (2 hours from her home), where the doctors concluded she had a virus. But after a gruelling 6 weeks Kyra’s mum insisted she be transferred to PMH where she underwent an MRI, a bone density scan, an ultra ...

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The Story of Charlotte

 

Charlotte has joy in being, hanging out and living in the present moment.

Charlotte was a relaxed, happy baby. A dream baby, who slept well, ate well and was full of joy. It was her first birthday when her parents noticed something different. They noticed that she was looking at, but not really seeing her colourful musical toy. Her personality changed and she became gloomy, would get upset and screamed easily. She stopped bottom shuffling ...

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