When Caitlin was just 4 months old, a series of tests including ultrasound, blood tests, lumbar punctures and an electroencephalogram (EEG) revealed her first diagnosis – Quadriplegic Spastic Cerebral Palsy. This means that damage in her brain has disrupted normal muscle functioning in all four of her limbs, causing jerky movements, muscle tightness and stiffness in her joints.
Caitlin is now 17, and her diagnoses have continued to pile up ever since. They now include chronic lung disease, epilepsy and vision ...Continue Reading →
Today’s story is about the power – the superpower! – of positivity.
Little Hero Emily has Spastic Diplegia, a type of Cerebral Palsy. Her parents were told when she was four weeks old (after being born at 29 weeks gestation) that she might not live, might not walk, and might not ever talk.
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On the 6th of November 2016, Hunter was enjoying himself at the spring fair like any other 3 year old. He was recovering from an ear infection and pneumonia and was looking quite pale.
Concerned, his mother touched his chest and immediately realized something wasn’t quite right. Hunter’s heart was racing. He was rushed to PMH in an ambulance, and was later diagnosed with Acute Lymphoblastic Leukaemia. In an instant the family’s world was turned upside down.
Hunter has endured 6 intense ...Continue Reading →
Believe in your child – treasure every milestone.
For some children, the path of life is a bumpy one – but determination, a happy disposition and family support help to smooth the way. Mackenzie’s path may have had bumps, may have bumps to come, but she is greatly loved. She is ...Continue Reading →
When Leila was 4, she was diagnosed with Mucopolysaccharidosis type 4 (MPS IV) also known as Morquio A Syndrome: a rare progressive condition that mainly affects the skeleton. The life expectancy of people with MPS IV depends on the severity of their symptoms – severely affected individuals may survive only until late childhood or adolescence. Those with milder forms of the disorder usually live into adulthood, although their life expectancy may be reduced. Spinal cord compression and airway obstruction are ...Continue Reading →
Heroism is not constrained by age or size. Rayaan, sometimes known as Little Buddha for his chubby appearance and calm nature, was a happy, healthy baby boy until he stopped breathing two weeks after his first birthday. He had no history of serious illness, there was no warning. It was terrifying for his parents to watch the emergency treatment ...Continue Reading →
This month we’re running a Double Warrior Special! Please send individual cards to each child to show them how inspiring they are!
Flynn is an enthusiastic almost 4-year-old boy who loves to show affection and tells everyone he sees about his interest in cars. He has a big sister Tilly who has just celebrated her 5th birthday (her first one not celebrated in the hospital). They have a very close sibling bond and she likes to help with his care everyday.
At ...Continue Reading →
Meet Riley, a cheeky little boy with an awesome sense of humour and endless energy (his superpower!). He loves playing with trucks and trains, and to see him running around the park and digging in the sandpit, you wouldn’t know that he also has leukaemia, enduring regular bouts of chemotherapy to battle his cancer.
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Leo is turning 4 next month, and has already been through more in his short life than most people will ever experience.
At 2 ½, he became unwell and exhibited a number of different symptoms for about 6 weeks. The symptoms themselves didn’t seem overly concerning at the time, but his parents were worried that he wasn’t improving. Eventually an ultrasound showed a tumour in his abdomen. Further testing lead to a diagnosis: stage 4 neuroblastoma.
Leo and his Mum moved in ...Continue Reading →