The Story of Ruby


Ruby was only seven months old when she was diagnosed with Acute Myeloid Leukaemia. Before Ruby had even turned one, she had endured six intensive rounds of chemotherapy, multiple lumbar punctures and major surgery. For Ruby’s parents, Emma and Joel, their lives were soon consumed with platelets, blood pressure, infections, hospital visits, blood counts and test results – the ...

Continue Reading →
0

The Story of Oli

 

I think we all need a little bit of Oli in us. Oli is like a bright shining star, overflowing with exuberance and joy.

His superpower is his happy personality. He is a true go-getter – and as Oli proudly declares, he is also a fast runner! Perhaps that’s why he’s always going million miles a minute, as his mom Elli ...

Continue Reading →
0

July’s Warrior – Deklen

Deklen (who turns 12 in July) has been diagnosed with high-functioning autism and selective mutism. He will only talk to his mother and a couple of his siblings; when they are not around he struggles to communicate.

At 4 ½, Deklen’s mother noticed him exhibiting behaviours similar to those of his older brother, who had already been diagnosed with autism.

Deklen underwent assessments by a paediatrician, a speech therapist and a psychologist. Thanks to his early diagnosis, Deklen was able to have ...

Continue Reading →
0

June’s Warrior – Tayte

When Tayte was 3 1/2, he came down with an ear infection – but he became so unwell that within 4 days he was admitted to ICU at Princess Margaret Hospital. There he underwent an MRI and lumbar puncture which provided an official diagnosis – Longitudinally Extensive Transverse Myelitis (LETM). During his stay in ICU, his lungs collapsed and his parents were told he had developed severe pneumonia. After a 10 day stay he was released from ICU onto the ...

Continue Reading →
0

May’s Warrior – Izabel

When Izabel (5) began suffering headaches, her family initially assumed she had a virus. But her symptoms didn’t improve, and after several trips to the hospital she was diagnosed with a breath holding condition. Then she stopped speaking, which was attributed to behavioural causes – but her mother was still concerned.

Izabel would wake in the morning with headaches so severe they made her vomit – but then she would feel better for the rest of the day. After several ...

Continue Reading →
0

April’s Warrior – Charli

Charli, who turns 3 in April, has a rare lung disease called Childhood Interstitial Lung Disease. It started after she caught a cold at 4.5 months old, causing inflammation of her lung tissue so that her lungs no longer absorb oxygen properly. She struggles to breathe every day, and requires continuous supplemental oxygen. Her condition is so rare it has no diagnosis or real prognosis.

Charli is on an immunosuppressant to prevent her immune system from attacking her lungs – but ...

Continue Reading →
0

March’s Warriors – Aidan and Kaelan

Aidan is 13 and Kaelan is 7. Their younger brother Kai was diagnosed with a rare form of leukaemia on 26th March 2015, when he just was 2 years old. Kai battled the disease for nearly 2 years, including many months of isolation during which Aidan and Kaelan were not able to spend time with their brother.

Kai’s initial bone marrow transplant from an anonymous donor put him into remission, but he sadly relapsed after less than a year. Following ...

Continue Reading →
0
Page 4 of 8 «...23456...»