February’s Warrior – Mackenzie

In June last year 4 year old Mackenzie suddenly began to have trouble walking, and she has been in and out of hospital ever since. Her medical team have just recently diagnosed her Metachromic Leukodystrophy, a very rare genetic metabolic disorder. Children with this cruel disease are slowly robbed of their ability to walk, talk, hear and see. Currently, Mackenzie’s only symptoms are lower limb weakness – she often needs to use a wheelchair and she requires assistance getting off ...

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January’s Warrior – Declan

Declan is 7, and has been battling cancer for nearly 4 years. When he was diagnosed with neuroblastoma just one week before his 4th birthday, he already had secondary cancer in 20% of his bones and bone marrow. His family had to relocate from Bridgetown so he could receive treatment. The initial 14 months of treatment involved intense chemotherapy, radiation, surgery, immunotherapy and stem cell transplant, and put him into remission.

Sadly after just 6 months he relapsed with a tumour ...

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December’s Warrior – Jackson

Jackson (now 6) was a happy, healthy and bright 3 year old until his world was turned upside down. After numerous medical appointments and still no satisfactory answers, Jackson was taken to the emergency department. There his parents received the devastating news – their only son was diagnosed with T-Cell Acute Lymphoblastic Leukaemia.

Jackson was immediately transferred to Princess Margaret Hospital where he began cancer treatment that very night. His condition became critical and he was moved to the ...

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November’s Warrior – Montana

Montana is 8, and has been fighting stage 4 neuroblastoma for 3 years. She had been experiencing intermittent pain in her left hip, which was first thought to be from her dancing, gymnastics and swimming. When the pain persisted, she had an ultrasound and x-ray which found nothing. Then one day at gymnastics she was asked to hold her arms above her head, and she screamed in pain. Her mother took her to the local hospital, and she was transferred ...

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The Story of Poppy

We often hear children described as “little rays of sunshine.” It’s clichéd, but what does it really mean?

Sunshine chases away darkness, and warms everything it touches. It’s an undeniable source of strength, and when you add rain, you get a rainbow. Colourful, captivating, a little bit mysterious – symbolic of hope.

Herein lies the spirit of Poppy – or P, as ...

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October’s Warriors – Jonte and Johnas

This month we’re running a Double Warrior Special! Please send individual cards to each child to acknowledge their amazing strength.

Jonte (6) and Johnas (4) are superstar big brothers whose lives changed dramatically when their baby sister suddenly lost all movement in her legs and torso, and doctors discovered a cancerous tumour called a neuroblastoma wrapped around her spinal cord.

So many things have changed in Jonte and Johnas’s lives since the diagnosis, but they have not complained once. When ...

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The Story of Maddox

You may not have heard of Duchenne. I certainly hadn’t until I met Maddox. His mum Fiona explained to me that most people, even medical professionals, don’t know what it is. But Duchenne muscular dystrophy is the most common muscle disease of childhood, affecting one in every 3500 children.

It has a 100% mortality rate. There is ...

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