June’s Warrior of the Month – Saxon

Saxon is 11 and battling relapsed cancer – Wilms tumour, a cancer of the kidneys. He was first diagnosed in January 2013, and had 5 surgeries and 10 months of chemotherapy. He went into remission in September 2014, but in April 2015 a routine scan showed a new tumour had developed, requiring a return to treatment.

The treatment is intensive, invasive and prolonged. Saxon is in hospital for 1 week in every 3 for chemotherapy and for the other 2 ...

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This is Blake

Blake was a bright, beautiful boy who marvelled at rainbows and delighted in life. But on April 17th 2010, just one and a half months after his third birthday, he was diagnosed with an Atypical Anaplastic Ependymoma – brain cancer. Ependymomas account for only 2-3% of primary brain tumours in adults, yet are the third most common brain tumour in children, with more than 30% being diagnosed in children under 3 years of age. Brain cancer kills more children in ...

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This is what haemophilia looks like

Deb and Pete consider themselves extremely lucky to have 5 amazing children: Callum (13), Georgia (11), Hunter and Angus (8), and Millar (3) – and all three of their boys have Haemophilia A. Haemophilia is not contagious – it is a congenital, inherited and lifelong disorder that their mother, as carrier, passed down to her boys. In Australia, haemophilia affects about one in every 10,000 males, and there is no known cure.

The diagnosis came out of the blue after Angus had a ...

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Meditative art for stress relief

In collaboration with Gillian McAuliffe of Practical Wisdom, we are thrilled to announce a pilot program of Zentangle® classes for children currently undergoing treatment for cancer or blood disorders, and their parents and siblings. Gillian is a certified Zentangle teacher and a strong advocate of the mental and physical benefits of Zentangling.

Already used therapeutically in a number of hospitals in America, this unique and powerful form of meditation through art has been associated with a range ...

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The emotional costs of childhood cancer

The fight against childhood cancer is physically brutal, but the emotional impacts can be even more severe, reaching far beyond the child themselves and continuing long past the end of treatment.

Imagine being told your child has cancer, and then being told you have 4 hours to uproot the entire family and move closer to the hospital. Your children have to start in new schools, make new friends; you have to find new jobs and new accommodations, and make arrangements for ...

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Your blood , liquid gold

The Australian Red Cross Blood Service says that 34% of blood donated goes towards helping cancer patients – but what does that actually mean?

Children undergoing treatment for cancer need blood and blood products such as platelets, cryoprecipitates and immunoglobulins for a variety of reasons. Some forms of cancer can cause internal bleeding, or affect the bone marrow itself, resulting in low blood counts. They may lose blood during surgery, and their body’s ability to produce blood cells is ...

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What you don’t know about cancer treatments

Before I was exposed to the world of childhood cancer, I thought I knew about cancer treatments. I knew about chemotherapy – it made you sick, and it made you lose your hair. I knew about radiation, and that sometimes cancers could be surgically removed. At least, I thought I knew.

But these are only the most basic, first-stop treatments, and I didn’t even know much about these. Children fighting cancer are subjected to numerous procedures which are beyond barbaric, and ...

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September is Childhood Cancer Awareness month

All around the world, communities are Going Gold this September to show their support for kids and families who are currently fighting for their lives, for those will face the fight in the future, for those who have already won, and most tragically for those who have lost their lives, failed by our current medical technology.

Childhood cancer is something that most people would rather not know about, yet more than 625 Australian children are diagnosed every year, almost half before ...

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The power of community

This week has seen an amazing demonstration of the power of community to create change.

A news article about the lack of a dedicated family room for oncology parents in the new Perth Children’s Hospital sparked outrage from affected families, and in response Communified (Inc) founder Rhiannon set up a petition at change.org asking Dr Kim Hames, WA Minister for Health, to reconsider.

Within 24 hours, the petition had received over 4000 signatures, and in the ...

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