blood disorders

February’s Warrior – Kyra

In February 2016, Kyra became unwell. She started getting fevers all the time and experiencing excruciating pain in her legs. She lost a lot of weight and always had dark circles around her eyes. She made several visits to the local hospital (2 hours from her home), where the doctors concluded she had a virus. But after a gruelling 6 weeks Kyra’s mum insisted she be transferred to PMH where she underwent an MRI, a bone density scan, an ultra ...

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March’s Warriors – Aidan and Kaelan

Aidan is 13 and Kaelan is 7. Their younger brother Kai was diagnosed with a rare form of leukaemia on 26th March 2015, when he just was 2 years old. Kai battled the disease for nearly 2 years, including many months of isolation during which Aidan and Kaelan were not able to spend time with their brother.

Kai’s initial bone marrow transplant from an anonymous donor put him into remission, but he sadly relapsed after less than a year. Following ...

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December’s Warrior – Jackson

Jackson (now 6) was a happy, healthy and bright 3 year old until his world was turned upside down. After numerous medical appointments and still no satisfactory answers, Jackson was taken to the emergency department. There his parents received the devastating news – their only son was diagnosed with T-Cell Acute Lymphoblastic Leukaemia.

Jackson was immediately transferred to Princess Margaret Hospital where he began cancer treatment that very night. His condition became critical and he was moved to the ...

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September’s Warrior of the Month – Xavier

Xavier was born with gastroschisis – a condition where the bowel develops outside of the abdomen. He arrived prematurely at 36 weeks, and spent 3 weeks in hospital as his intestines were gently squeezed back into his belly and surgeons repaired the hole in his abdominal wall. Once he arrived home, Xavier endured a lot of tummy aches and constipation – but he always had a smile on his face.

At age 4, after a series of common but not particularly ...

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June’s Warrior of the Month – Henry

Henry was diagnosed with acute lymphoblastic leukaemia in March 2015, just after his 2nd birthday. He is now 3, and is expected to continue treatment until September 2017. He had a port surgically inserted within a couple of days of diagnosis, as he was so hard to cannulate. Unfortunately this port got infected, so it had to be removed and then replaced with a new one.

After several months of intensive chemotherapy, Henry went into maintenance in September last year. ...

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Cancer treatment saves lives

Deeply saddened by the story of one family fighting to prevent their son from receiving chemotherapy and radiotherapy, Perth’s paediatric oncology community is coming together to thank the doctors, nurses and support staff at PMH and the research community worldwide for saving our children’s lives.

While the treatments can be brutal and many children do suffer long term side effects, exactly who will be affected and how they will be impacted is unpredictable. But one thing holds true above ...

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April’s Warrior of the Month – Reagan

One day in April 2014, Reagan (then 4) was sent home from school sick. He was diagnosed with tonsillitis, despite his tonsils having been removed 6 months prior, but within half an hour of leaving the doctor’s office he suffered a febrile convulsion. An emergency trip to Fremantle Hospital diagnosed pharyngitis, and after completing the prescribed course of antibiotics, all seemed well.

However 3 weeks later, he was again sent home from school sick. A doctor at the walk in clinic ...

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March’s Warriors of the Month – Jalen and Montana

This month we’re running a Double Warrior Special! Please send individual cards to each child to acknowledge their amazing strength.

Jalen is 15, a very active and outgoing young man who always puts everyone else first. He was very proud to be named Head Captain for his house group at school this year – but unfortunately he will not be able to attend for most of this year, if at all.

In March 2012 Jalen was diagnosed with acute lymphoblastic ...

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February’s Warrior of the Month – Rachel

Rachel and her twin sister Naomi were both diagnosed with infantile Acute Lymphoblastic Leukaemia when they were just 7 weeks old. They had high dose chemotherapy for 6 months, including steroids and monthly lumbar punctures, followed by a bone marrow transplant donated one of their sisters who was 11 at the time. During transplant Rachel stopped breathing and her heart stopped. After several minutes she was resuscitated, intubated and sent to ICU where she stayed for roughly a month on ...

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