Imogen is a happy, loud, beautiful and full-spirited three-year-old little girl she has lots of empathy and wants to cuddle other kids. Imogen has an extremely rare condition, (one of 3 in Western Australia), called Fanconi anaemia. This disorder prevents the bone marrow from making enough new blood cells for the body to work eventually leading to aplastic anaemia. It can cause a range of physical problems, including bone marrow failure, organ problems and increased likelihood of cancer. She also has Aqueduct Stenosis a condition which blocks the flow of cerebrospinal fluid out of her brain, meaning she has a shunt to help the flow of cerebrospinal fluid. Imogen is also hearing impaired, has global delay and delayed speech skills.
Imogen is on daily medicine which means she is immune suppressed and prone to infections. This means she can’t socialise or go to school like other kids. She also spends a lot of time in the hospital with infections. She sees lots of specialists and doctors and has regular occupational, physiotherapy and speech therapy. Imogen also does one on one speech therapy learning sign language. Communicating is very tricky and she gets frustrated easily and always needs her family to help her or play with her and be there or she gets upset. She has a needle phobia which is difficult given all the treatment she needs.
Imogen is about to undergo fight of her life and is scheduled for a bone marrow transplant due to her bone marrow failure. This is due to start in March with many appointments beforehand to prepare.
Imogen loves Paw Patrol and Frozen. She loves playing outdoors, with her splash pool and swings. She enjoys car rides and loves her food. She also loves her cat Nevada; they are best friends. A dream day would be to be with animals or out and about. Imogen would love to receive cards and letters to wish her best wishes with her bone marrow transplant.Share