Maddie’s journey has been quite complicated right from the beginning. She initially spent 7 days in ICU when she was diagnosed with AML on 6th January 2018.
She had a stroke a few days later as a result of the leukemia, which caused her to go blind and left her with some weakness on her left side. She had three seizures a couple of weeks later which put her back into ICU for a few more days. She had a severe case of pneumonia which delayed one of her rounds of chemo for a few weeks and she had one more scare nearly a month ago when she had another seizure with a few additional complications.
Maddie’s treatment for AML was 5 rounds of chemo, which she has now completed. On the 2nd August after more than 200 days in hospital she was allowed to go home.
She still has a very long road ahead of her with her treatment but the biggest adjustment in her life right now is learning to navigate the world being a visually impaired 10 year old girl.
Maddie hasn’t attended school this year and she probably won’t be returning to school until next year. She will need a full time education assistant with her at all times who will be fully trained in braille. Maddie has been learning braille for a few months now and she absolutely loves it. Her braille teacher visits her three times a week and is amazed at how quickly Maddie is picking it up.
Maddie started dancing when she was 2 years old and it is the one thing she has missed the most since her diagnosis. She is hoping she will be able to dance again once she is stronger.Share