Posts Tagged 'community'

February’s Warrior -Imogen

Imogen is a happy, loud, beautiful and full-spirited three-year-old little girl she has lots of empathy and wants to cuddle other kids. Imogen has an extremely rare condition, (one of 3 in Western Australia), called Fanconi anaemia. This disorder prevents the bone marrow from making enough new blood cells for the body to work eventually leading to aplastic anaemia. It can cause a range of physical problems, including bone marrow failure, organ problems and increased likelihood of cancer. She also ...

Continue Reading →
0

August Warrior – William

William is definitely a warrior. Every hurdle William is presented with, he will always find one way or another to get over it. He’s a happy three-and-a-half-year-old with the most infectious smile around…. nothing bothers him.

William was diagnosed with Renal Coloboma Syndrome when he was a baby, a condition that affects kidney and eye development. William had his left kidney removed at 6 months old and is vision impaired. William has also been diagnosed with laryngomalacia, a condition that affects the vocal cords and impacts breathing and swallowing. ...

Continue Reading →
0

March’s Warriors – Aidan and Kaelan

Aidan is 13 and Kaelan is 7. Their younger brother Kai was diagnosed with a rare form of leukaemia on 26th March 2015, when he just was 2 years old. Kai battled the disease for nearly 2 years, including many months of isolation during which Aidan and Kaelan were not able to spend time with their brother.

Kai’s initial bone marrow transplant from an anonymous donor put him into remission, but he sadly relapsed after less than a year. Following ...

Continue Reading →
0

January’s Warrior – Declan

Declan is 7, and has been battling cancer for nearly 4 years. When he was diagnosed with neuroblastoma just one week before his 4th birthday, he already had secondary cancer in 20% of his bones and bone marrow. His family had to relocate from Bridgetown so he could receive treatment. The initial 14 months of treatment involved intense chemotherapy, radiation, surgery, immunotherapy and stem cell transplant, and put him into remission.

Sadly after just 6 months he relapsed with a tumour ...

Continue Reading →
0

What you don’t know about cancer treatments

Before I was exposed to the world of childhood cancer, I thought I knew about cancer treatments. I knew about chemotherapy – it made you sick, and it made you lose your hair. I knew about radiation, and that sometimes cancers could be surgically removed. At least, I thought I knew.

But these are only the most basic, first-stop treatments, and I didn’t even know much about these. Children fighting cancer are subjected to numerous procedures which are beyond barbaric, and ...

Continue Reading →
0

September is Childhood Cancer Awareness month

All around the world, communities are Going Gold this September to show their support for kids and families who are currently fighting for their lives, for those will face the fight in the future, for those who have already won, and most tragically for those who have lost their lives, failed by our current medical technology.

Childhood cancer is something that most people would rather not know about, yet more than 625 Australian children are diagnosed every year, almost half before ...

Continue Reading →
0

The power of community

This week has seen an amazing demonstration of the power of community to create change.

A news article about the lack of a dedicated family room for oncology parents in the new Perth Children’s Hospital sparked outrage from affected families, and in response Communified (Inc) founder Rhiannon set up a petition at change.org asking Dr Kim Hames, WA Minister for Health, to reconsider.

Within 24 hours, the petition had received over 4000 signatures, and in the ...

Continue Reading →
0