The Story of Lucy

With her joyful smile, big blue eyes and super-long eyelashes, Lucy brightens every room she walks into. Her cuddles are her super-power – when Lucy wraps her arms tightly around you, it’s impossible not to feel happy!

From the cheeky smile on her face and the way she makes everybody laugh, you’d never guess that Lucy suffered from Mid-Aortic Syndrome – a very rare condition in which part of the aorta (the heart’s largest blood vessel) that runs through the chest and abdomen becomes narrow. This can lead to lower blood flow in the chest, abdomen and lower limbs. Most children with mid-aortic syndrome have renovascular hypertension and very high blood pressure which is hard to control. They can also experience other symptoms including headaches, seizures, vision changes, abdominal pain, discomfort or weakness and failure to grow properly.

Despite her illness, Lucy is always smiling, especially when she’s at home with her family, playing with big brother Ryder, big sister Sophie, best friend Toby, pet cat Monkey and pet pug Frankie.

Only 1 in 500,000 children will get Mid-Aortic Syndrome, and although Lucy’s nephrologist is fantastic, he doesn’t have all the answers for Lucy. “This is why we try and enjoy every day with her,” Lucy’s mum Alison says.

“A quote that we live by is: ‘Don’t sweat the small stuff.’ We have been in the children’s hospital with Lucy too many times and seen so many sick children.

Worry about the things you need to worry about, not little things that you can’t control.”



You can purchase prints of Lucy’s artwork here – all proceeds help us to support more kids like Lucy.


| Lisa Shearon 

Artwork by
| Jade Foo  | Creature & Cub | @creatureandcub |

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